Obstetric and Neonatal Professionals Must Work More Closely with Pregnant People to Identify Liver Diseases Early

Global River Institute Raises Attention to Rare Liver Disease and Pregnancy with 3rd Annual #RareAware Campaign

February is Rare Liver Disease Month

GLI to Host 3rd Annual Rare Liver Disease Month in February 2023 to Raise Awareness of Various Types of Rare Liver Disease Through Weekly Topics, Insightful Discussions, Patient Highlights and More Excited! This February will focus on liver disease in pregnancy, pregnancy with rare liver disease, and parenthood. Join the conversation using #RareAware. Details: https://globalliver.org/rare-liver-diseases-month/

WASHINGTON, DC, Feb. 01, 2023 (GLOBE NEWSWIRE) — The Global River Institute (GLI) today launched its third annual #RareAware campaign, raising the challenge of liver health to maternal and neonatal health through a series of series Raise awareness and build resources for Webinars, storytimes, social media outreach. Liver diseases such as ICP and BA can complicate pregnancy, endanger the early life of the newborn and, in the worst cases, threaten the life of the baby and mother.

“Families of most pregnant women and young children have not been informed that liver health is an essential aspect of a healthy pregnancy and childbirth,” said Donna R. Cryer, president and CEO of GLI ( JD) said: “To save the lives of these parents and their children, to promote timely diagnosis and comprehensive care for pregnant women and their babies. , to strengthen the primary care system.”

Rare maternal and neonatal liver diseases, largely unheard of and rarely discussed, affect thousands of lives worldwide.

  • Hemolysis, high liver enzymes and low platelets (HELLP) syndrome, a severe form of preeclampsia, threatens the lives of mother and baby in 1 in 1000 pregnancies.

  • Pre-existing nonalcoholic fatty liver disease (NAFLD) is associated with intrahepatic cholestasis (ICP) of pregnancy, a problem with bile flow within the liver that affects 1 in 300 pregnancies .

  • Acute fatty liver of pregnancy can develop postpartum, is very rare, but can be very fatal.

  • Many rare liver diseases begin to affect newborns in the first few years of life, causing life-threatening symptoms if not treated promptly.

  • Jaundice (yellowing of the skin and eyes due to excess bilirubin), which is common in infants, may be a benign symptom of the developing liver or indicate a serious disorder.

With liver disease during pregnancy or early in life, early diagnosis is critical to access the complex and robust care needed to alleviate the problem. Misdiagnosis or delayed diagnosis, often due to the appearance of symptoms late in pregnancy, can increase the risk.

Ignoring liver disease during pregnancy can lead to serious health complications for both mother and baby. Mothers can experience liver failure, bleeding, and infections. Babies may be born prematurely or with low birth weight, which increases the risk of maternal death and may also cause liver problems. can even cause complications. Clearly, for many patients, a liver treatment plan is an important part of a healthy pregnancy.

Thus, many of us live in obstetrical deserts, have limited access to care due to inadequate insurance coverage, have delayed diagnoses, and the high financial burden of treating rare diseases. We must collectively remove barriers to comprehensive prenatal care facing millions of people. Gather. These barriers are most pronounced for already disadvantaged communities, so they are both a matter of equity and a matter of life and death. A proactive and caring prenatal and neonatal care team can help fill that gap.

February is full of opportunities to learn and share about the troubling relationship between liver disease and maternal and neonatal health.

  • Download our social media toolkit and share your graphics with your followers.

  • Learn about various rare liver diseases through our ‘Be #RareAware’ posts

  • Watch weekly episodes of GLI LIVE every Wednesday at 12pm on Facebook, LinkedIn and YouTube.

  • Subscribe to our roundtable series to explore important perspectives on pregnancy and liver disease.

  • Join a book discussion with Extraordinary! co-authors Kara & Evren Ayik to help families with rare liver disease understand their condition and connect with their peers.

Join the conversation online with the hashtag #RareAware!

“No matter who you are or where you live, you have the right to the best possible care during pregnancy and childbirth, including discussion about your liver health,” said Pediatric and Rare Liver Diseases at GLI. said Royze Cachero, manager of

Please join us!

If you have any questions about the campaign, or if you or your organization are interested in getting further involved, please contact pedsrare@globalliver.org. For media inquiries, please contact communications@globalliver.org.


About Global River Institute
The Global Liver Institute (GLI) is a 501(c)3 non-profit organization driven by the belief that liver health must be placed on the global public health agenda commensurate with the prevalence and impact of liver disease. was established on the basis of GLI fosters innovation, fosters collaboration, and supports the scaling of optimal approaches to help eradicate liver disease. With global operations, GLI is committed to solving key issues for people with liver disease and developing advocates to improve the lives of individuals and families affected by liver disease. Follow GLI on Twitter, Facebook, Instagram, LinkedIn, and YouTube.


CONTACT: Christine Maalouf Global Liver Institute cmaalouf@globalliver.org

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